ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため
Home > General > ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため
ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため

ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため


     0     
5
4
3
2
1



International Edition


About the Book

希少(きしょう)疾患(しっかん)を持(も)つ子(こ)どもの

どこが「ずばぬけて」いるの?

エヴレンとの会話(かいわ)をとおして、

その答(こた)えをいっしょに探(さが)していこう。

エヴレン自身(じしん)が希少(きしょう)疾患(しっかん)(めずらしい病気(びょうき))を

かかえて成長(せいちょう)していく中(なか)で、学(まな)んだことを

みんなに教(おし)えていくよ。

母(はは)と息子(むすこ)がいっしょに書(か)いたこの本(ほん)では、希少(きしょう)疾患(しっかん)とともに生(い)きる上(うえ)での困難(こんなん)と希望(きぼう)をふまえて、アイデンティティ(自分(じぶん)らしさ)、インクルージョン(だれも仲間(なかま)はずれにしないでみんな仲間(なかま)に入れること)、自分(じぶん)に対(たい)するイメージについて子(こ)ども向(む)けのお話(はなし)をします。超希少(ちょうきしょう)疾患(しっかん)をかかえながら育(そだ)った、作者(さくしゃ)の一人(ひとり)であるエヴレンさんの実体験(じったいけん)にもとづいて丁寧(ていねい)に書(か)かれたこの本(ほん)は、自分(じぶん)のアイデンティティや、希少(きしょう)疾患(しっかん)を持(も)っていることでなぜアイデンティティがうまく形成(けいせい)できるのかを理解(りかい)するためのヒントを子(こ)どもたちに与(あた)えます。ご家族(かぞく)の方(かた)や介護者(かいごしゃ)の方は、子(こ)どもたちひとりひとりの発達(はったつ)段階(だんかい)に合(あ)わせて読(よ)み聞(き)かせをしてあげてください。受賞歴(じゅしょうれき)のある画家(がか)であり、子(こ)ども向(む)けの本(ほん)のイラストレーターでもあるイアン・デール氏による繊細(せんさい)で生(い)き生(い)きとしたイラストとともに、『ずばぬけた!』に込(こ)められた心温(こころあたた)まるメッセージを通(とお)して、希少(きしょう)疾患(しっかん)を持(も)つすべての子(こ)どもたちが、最高(さいこう)の人生(じんせい)を送(おく)ることができるように元気(げんき)づけられ、はげまされることを願(ねが)っています。


Best Sellers



Product Details
  • ISBN-13: 9798986801179
  • Publisher: Kara Ayik
  • Binding: Hardback
  • Language: Japanese
  • Returnable: N
  • Weight: 358 gr
  • ISBN-10: 8986801175
  • Publisher Date: 04 Feb 2024
  • Height: 254 mm
  • No of Pages: 34
  • Spine Width: 6 mm
  • Width: 178 mm


Similar Products

Add Photo
Add Photo

Customer Reviews

REVIEWS      0     
Click Here To Be The First to Review this Product
ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため
Kara Ayik -
ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため
Writing guidlines
We want to publish your review, so please:
  • keep your review on the product. Review's that defame author's character will be rejected.
  • Keep your review focused on the product.
  • Avoid writing about customer service. contact us instead if you have issue requiring immediate attention.
  • Refrain from mentioning competitors or the specific price you paid for the product.
  • Do not include any personally identifiable information, such as full names.

ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため

Required fields are marked with *

Review Title*
Review
    Add Photo Add up to 6 photos
    Would you recommend this product to a friend?
    Tag this Book Read more
    Does your review contain spoilers?
    What type of reader best describes you?
    I agree to the terms & conditions
    You may receive emails regarding this submission. Any emails will include the ability to opt-out of future communications.

    CUSTOMER RATINGS AND REVIEWS AND QUESTIONS AND ANSWERS TERMS OF USE

    These Terms of Use govern your conduct associated with the Customer Ratings and Reviews and/or Questions and Answers service offered by Bookswagon (the "CRR Service").


    By submitting any content to Bookswagon, you guarantee that:
    • You are the sole author and owner of the intellectual property rights in the content;
    • All "moral rights" that you may have in such content have been voluntarily waived by you;
    • All content that you post is accurate;
    • You are at least 13 years old;
    • Use of the content you supply does not violate these Terms of Use and will not cause injury to any person or entity.
    You further agree that you may not submit any content:
    • That is known by you to be false, inaccurate or misleading;
    • That infringes any third party's copyright, patent, trademark, trade secret or other proprietary rights or rights of publicity or privacy;
    • That violates any law, statute, ordinance or regulation (including, but not limited to, those governing, consumer protection, unfair competition, anti-discrimination or false advertising);
    • That is, or may reasonably be considered to be, defamatory, libelous, hateful, racially or religiously biased or offensive, unlawfully threatening or unlawfully harassing to any individual, partnership or corporation;
    • For which you were compensated or granted any consideration by any unapproved third party;
    • That includes any information that references other websites, addresses, email addresses, contact information or phone numbers;
    • That contains any computer viruses, worms or other potentially damaging computer programs or files.
    You agree to indemnify and hold Bookswagon (and its officers, directors, agents, subsidiaries, joint ventures, employees and third-party service providers, including but not limited to Bazaarvoice, Inc.), harmless from all claims, demands, and damages (actual and consequential) of every kind and nature, known and unknown including reasonable attorneys' fees, arising out of a breach of your representations and warranties set forth above, or your violation of any law or the rights of a third party.


    For any content that you submit, you grant Bookswagon a perpetual, irrevocable, royalty-free, transferable right and license to use, copy, modify, delete in its entirety, adapt, publish, translate, create derivative works from and/or sell, transfer, and/or distribute such content and/or incorporate such content into any form, medium or technology throughout the world without compensation to you. Additionally,  Bookswagon may transfer or share any personal information that you submit with its third-party service providers, including but not limited to Bazaarvoice, Inc. in accordance with  Privacy Policy


    All content that you submit may be used at Bookswagon's sole discretion. Bookswagon reserves the right to change, condense, withhold publication, remove or delete any content on Bookswagon's website that Bookswagon deems, in its sole discretion, to violate the content guidelines or any other provision of these Terms of Use.  Bookswagon does not guarantee that you will have any recourse through Bookswagon to edit or delete any content you have submitted. Ratings and written comments are generally posted within two to four business days. However, Bookswagon reserves the right to remove or to refuse to post any submission to the extent authorized by law. You acknowledge that you, not Bookswagon, are responsible for the contents of your submission. None of the content that you submit shall be subject to any obligation of confidence on the part of Bookswagon, its agents, subsidiaries, affiliates, partners or third party service providers (including but not limited to Bazaarvoice, Inc.)and their respective directors, officers and employees.

    Accept

    New Arrivals



    Inspired by your browsing history


    Your review has been submitted!

    You've already reviewed this product!