ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため
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ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため

ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため


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About the Book

希少(きしょう)疾患(しっかん)を持(も)つ子(こ)どもの

どこが「ずばぬけて」いるの?

エヴレンとの会話(かいわ)をとおして、

その答(こた)えをいっしょに探(さが)していこう。

エヴレン自身(じしん)が希少(きしょう)疾患(しっかん)(めずらしい病気(びょうき))を

かかえて成長(せいちょう)していく中(なか)で、学(まな)んだことを

みんなに教(おし)えていくよ。

母(はは)と息子(むすこ)がいっしょに書(か)いたこの本(ほん)では、希少(きしょう)疾患(しっかん)とともに生(い)きる上(うえ)での困難(こんなん)と希望(きぼう)をふまえて、アイデンティティ(自分(じぶん)らしさ)、インクルージョン(だれも仲間(なかま)はずれにしないでみんな仲間(なかま)に入れること)、自分(じぶん)に対(たい)するイメージについて子(こ)ども向(む)けのお話(はなし)をします。超希少(ちょうきしょう)疾患(しっかん)をかかえながら育(そだ)った、作者(さくしゃ)の一人(ひとり)であるエヴレンさんの実体験(じったいけん)にもとづいて丁寧(ていねい)に書(か)かれたこの本(ほん)は、自分(じぶん)のアイデンティティや、希少(きしょう)疾患(しっかん)を持(も)っていることでなぜアイデンティティがうまく形成(けいせい)できるのかを理解(りかい)するためのヒントを子(こ)どもたちに与(あた)えます。ご家族(かぞく)の方(かた)や介護者(かいごしゃ)の方は、子(こ)どもたちひとりひとりの発達(はったつ)段階(だんかい)に合(あ)わせて読(よ)み聞(き)かせをしてあげてください。受賞歴(じゅしょうれき)のある画家(がか)であり、子(こ)ども向(む)けの本(ほん)のイラストレーターでもあるイアン・デール氏による繊細(せんさい)で生(い)き生(い)きとしたイラストとともに、『ずばぬけた!』に込(こ)められた心温(こころあたた)まるメッセージを通(とお)して、希少(きしょう)疾患(しっかん)を持(も)つすべての子(こ)どもたちが、最高(さいこう)の人生(じんせい)を送(おく)ることができるように元気(げんき)づけられ、はげまされることを願(ねが)っています。


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Product Details
  • ISBN-13: 9798986801186
  • Publisher: Kara Ayik
  • Binding: Paperback
  • Language: Japanese
  • Returnable: N
  • Weight: 150 gr
  • ISBN-10: 8986801183
  • Publisher Date: 04 Feb 2024
  • Height: 254 mm
  • No of Pages: 34
  • Spine Width: 2 mm
  • Width: 178 mm


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ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため
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ずばぬけた!希少きしょう疾患しっかんを持もつ子こどもたちのため
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