Eva the AdventurerEva is a bright, determined girl with a bountiful imagination. She fills each day with adventures, squeezing in as much as she can before bedtime. A trip to moon, cure a rare disease, drive a train? Absolutely.
What will today bring?
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Ang pakikipagsapalaran ni EvaSi Eva ay mahilig makipagsapalaran. May mga araw na si Eva ay isang astronaut na lumilipad sa buwan. May mga araw na si Eva ay isang mang-aawit ng opera. May mga araw na si Eva ay isang dalubhasa sa pang-gagamot ng mga bibihirang karamdaman.
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What gender stereotypes?Our princess is more likely to save herself than to wait for her prince. She'll be train driving, rocketship flying, and opera singing. We hope girls and boys will not be held back by gender stereotypes, and we strive to portray positive gender examples.
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Ang munting aklat na ito ay isinulat upang suportahan ang Team Mikaere at Joseph's Goal - Isang organisasyon ng pangkawang-gawa para sa mga batang may non- ketotic hyperglycinemia. Ito ay isang hindi pangkaraniwan at terminal na karamdaman.
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Supporting Children's Charities + NKH ResearchOur books support children with NonKetotic Hyperglycinemia, a rare and terminal metabolic disorder.
It's hard to explain what NKH is like, as a parent. To watch your baby have countless seizures, miss every milestone and live an incredibly medicalised life. The pain and suffering are heartbreaking. The fear and grief can be overwhelming.
So we have our hope in a cure. Specifically a gene therapy cure. Even more specifically, a cure currently in development by Prof. Nick Greene of UCL in London, UK. We believe he is the closest to a clinical trial. The closest to giving us a future with our son.
Because NKH is so rare (less than 40 children in the UK, less than 500 worldwide) there is little to no awareness. There is little to no funding for research. So we, as parents fund what can. Through local fundraisers, and events and raffles. And children's books.
All our books support Team Mikaere and Joseph's Goal - a charity for children with Nonketotic Hyperglycinemia.
Thank you for helping fund a cure for our children.
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Available in bilingual form! Sometimes, one parent can speak a language the other doesn't, and bedtime stories shouldn't suffer because of it. Sharing the love of languages and learning is a priority for us - all our books will be available in bilingual forms.
Currently available in English and French, Dutch, Spanish, German and Serbian. More languages coming soon!
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